Evolution of ‘IconDoIt.Blog’ a.k.a. ‘The Art of Survival’

Back in 2009, I began this blog during a dire time in my life when I was battling a multi-front war against the demons of uterine cancer, hepatitis-C, non-alcoholic liver cirrhosis, epilepsy, unilateral sudden-hearing-loss (due to a stroke) and the devastating side-effects of 3 separate 12-15 month rounds of the now outdated, ineffective chemotherapy comprised of Pegalated Interferon-alpha2B and Ribavirin (both of which list suicide and homicide amongst their so-called “side-effects”!)which kept me flat on my back for multiple years, while also revealing a genetic-defect that lead to full-blown hereditary hemochromatosis, a condition that causes iron to build-up in one’s major organs and brain. In the years since, colon cancer, hepatic encephalopathy, and various other serious and not so serious physically challenges heaped onto the mix. Separately, I was also engaged for the 1st 10 years of this blog in an acrimonious, depressing legal battle to obtain my deceased Mother’s medical records in the hopes of finding clues to the root cause of my physical ailments before they could ultimately kill me (in 2003 my physicians gave me a prognosis of 5-10 years at most). SO, the thinking behind the start of “IconDoIt – The Art of Survival” was to give me a coping mechanism that would distract my mind, occupy my hands, give me something to smile about and allow me to be productive in a positive way that my physical limitations could manage.

At the start, I had no idea what the future held or how a simple blog could – and would – actually serve as the psychological means for me to hold onto my sanity and resolve through seemingly impossible challenges (which continued to expand throughout the years and well beyond my own physical concerns.) Through the blog, I made friends across the USA and indeed the world that deepened my understanding, compassion and gratefulness for the many blessings I’ve had andthe shared strength of faith, validation, and forgiveness. I developed skills I never knew I had the capacity for that evolved from creating tiny 128px x 128px icons to life-size designs on hundreds of products sold around the world through 8 online stores and broadened my interests, research, knowledge, writing skills that have lead to my being able to offer practical usefullness to others in ways that I never dreamed about.

As a result of my life expanding and contracting over the years as a consequence of not only my own progress but also due to major breakthroughs in treatment options, technology, the inevitable effects of aging, and life-altering family challenges (including the loss of my live-in Mother-in-Law to dementia, devastating loss of my long-distance father, the heart-breaking loss of my life-long best friend to suicide, the earth-shattering loss of my soul-mate husband of 44 years, and the on-going roller-coaster life with my adult son who remains my everything), my involvement in keeping up this Blog has dwindled down to basically nothing since 2012 except for numerous unpublished posts, held back perhaps due to false pride over being depressed and not wanting to inflict my not-so inspiring thoughts on my Readers. I realize now I was wrong to hold back, not only for the good it might have done me but also for the potential way I perhaps could have helped others by admitting I am only human after all, and not impervious to feeling the negative effects of injustice and the type of defeat that threatened tremors at the very core of my soul.

My preferred self-image of constant optimism and moral courage at all times, while an ideal I have always strove for, has not been as effortless as I had tried to convince myself and others. This reality caused me to question my continued worth, despite all my past accomplishments and new avenues, which I then used as an excuse to pull back on my direct interactions with others (an excuse made easier for me to accept due to the fact of my subsequent complete loss of all hearing, diminished vision, and increased mobility problems.) Yet knowing in my heart that none nor all of those challenges combined could justify feeling sorry for myself, I am finally trying to live up to a new resolve to get back to trying to live up to my potential for making a positive difference in this world by sharing my experiences, both good and bad, my thoughts, my talents, and looking for new ways to engage with others and hopefully inspire at least one other person out there (along with myself) to do more than we thought we could.

I appreciate your patience.

RE-BLOG and UPDATE: The Bronze Killer and Me

POST ORIGINALLY PUBLISHED 7/03/2010. I am re-blogging it along with a new section as part of the national campaign for:
HEREDITARY HEMOCHROMATOSIS AWARENESS MONTH

Posted by: • Date:

Still trying to catch up to where I left off before my trip. Too much to do but my body and mind just refuse to cooperate for more than a half-hour at a time. I am truly thankful for the fact that I don’t suffer from the huge mood-swings or periods of sudden rage that often accompanies Hereditary Hemochromatosis, at the same time though, I’m really frustrated by the increasing inability to focus both my mind – and my eyes. It’s like I’ve suddenly developed ADHD at the age of 56 and someone keeps moving my monitor closer than farther away then closer then… Well, you get the idea. HFE is such an odd disease in that it can have so many manifestations and it seems that no two people have the exact same combination of symptoms and the mix changes constantly.

Read More about Hemochromatosis Awareness Month

I’ve got great doctors – but none of them have HFE so they can’t really relate to what I’m going through, and I’ve been searching for other who have HFE to compare notes with. Through those searches, I came across a reference to the book “The Bronze Killer” by Marie Warder and on Amazon.com there were a ton of reviews of the book that were all just raving about how it’s considered the BEST book on the subject of HFE and more specifically, on the experience of the author’s husband and both children having it and how it’s affected all of them. Marie’s husband is like me in that he was not diagnosed until after he had already suffered permanent damage to his liver while her children were fortunately diagnosed before the disease had advanced that far. I ordered the book on Tuesday and received it Thursday. I used to read at least 1 book a day but those days are long gone and so I’m only on page 11. I’ll fill you in as I get farther along.

UPDATED INFO:

The importance of sharing medical records and information with your immediate family members must not be taken lightly or ignored. People rarely feel any significant symptoms of Hereditary Hemochromatosis (HFE) until it’s too late to avoid permanent, life-threatening harm. But unlike an unexpected car crash, broken spine, or burst appendix, the majority of cases of HFE CAN be predicted, tested for, and even prevented IF there is a known family history of a combination of certain risk factors (even where there’s no family history of HFE having been diagnosed). If a patient is found to have any of the genetic defects that can lead to Hereditary Hemochromatosis, from one or both of their parents, and before they have suffered any permanent damage to their organs, there are easy steps to take that can prevent most or possibly all of the debilitating and dangerous effects of the full blown disease and allow that patient to live a “normal” life and have a “normal” life-span.

Most people think that because they personally were never diagnosed with HFE then there is nothing in their medical records that could possible be of help to their family. WRONG! That’s because, despite being the most common of all genetic diseases, HFE is very rarely diagnosed. Before 1996 there wasn’t even a test that could positively identify it! But our medical records contain much more than a list of diagnosis and treatments. Doctors keep notes of symptoms you complain of, what they have tested you for, the raw results of those tests (meaning just the numbers without interpretation), and what the doctor suspected as well as ruled out as the cause of your symptoms. These are the most critical parts of your records because it is not a single number that is too high or too low that would indicate you MIGHT have Hereditary Hemochromatosis – rather it is the combination of which numbers are low, which are high, and which are “normal” – and how consistent those numbers remain or whether they steadily increase or decrease over the years and in combination with what other symptoms and diseases or conditions. So the judgment of which records are needed cannot be made by someone with either a conflict of interest and/or a lack of the specific medical training to understand the interplay of such information.

Yes, we each do have the right of privacy when it comes to our health records – but PLEASE consider the fate of your family: siblings, children, parents, grandchildren, and 1st cousins. Carefully weigh what is really more important: that none of your family ever find out you once had Herpes or an abortion or whatever else may be embarassing or even shameful – OR – that you can actually help save your loved ones lives or atleast allow them to have a better quality of life for a longer time simply by sharing your un-edited medical history?

A good way to start the dialog with your family members on the importance of being open and sharing, the Surgeon General of the United States has launched a public health campaign and has provided tools to help you create a Family Health Portrait. Access the My Family Health Portrait Web tool at https://familyhistory.hhs.gov/.

Now, back to the original blog post:

Completely off-subject but appropos for this weekend when those of us who are blessed to be Citizens of The United States celebrate our Independence Day on the 4th of July, I’ve created a few patriotic icons as well as a Desktop Picture (in 3 different screen sizes) for you. Enjoy!

Free Clip-Art / Icons & Wallpaper of the Day

The following images are either full or reduced size previews. Simply right-click (or control-click) on the preview to save the image(s) of your choice to your desktop. (Unless otherwise noted, downloads are 512px X 512px in .png format). As always, usage of any of the images offered on this blog are free for your personal use while subject to the limitations of my Creative Commons Non-Commercial – Attribution – No Derivatives 3.0 license. (See sidebar for details)

Star Spangled 1600x1200

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Old FlagColumbia

Freedom Flag